Information regarding Health for people with a learning disability. This includes hospital care, primary care, local specialist care and more.

The Confidential Inquiry into the deaths of people with learning disabilities, CIPOLD report of 2013 showed extensive inequalities in healthcare for people with a learning disability. It agreed with other reports that people with a learning disability were dying much sooner than thir peers and from preventable causes.

CIPOLD Report in full:  fullfinalreport.pdf (

LeDeR (Learning from Lives and Deaths – People with a Learning Disability and Autistic people) is a programme of work established in 2017. It reviews the lives and deaths of people with a learning disability and autistic people and looks for learning, improvement opportunities, areas of inequality and areas of good practice. Funded by the NHS it looks to improve the lives and healthcare of people with a learning disability and autistic people.  LeDeR – Home

Essex Carers Network sits on the LeDer panel to consider the findings from those reviews, make recommendations, ask questions and note good practice.


NHS - learning disability

The NHS has a page on their website with information about learning disability. There are also links to many other pages from this.

an image of the Logo - Lasting Power of Attorney

A lasting power of attorney (LPA) is a legal document that lets someone (the ‘donor’) appoint one or more people (known as ‘attorneys’) to help them make decisions or to make decisions on their behalf. This can be for property & financial affairs, health & welfare or both. The person has to have mental capacity to agree to a lasting power of attorney. This link takes you to the website for to make, register or end a Lasting Power of Attorney.

Please take advise if you are unsure if this is the option for your family.


NHS - LeDer

LeDeR Learning from the Live and Deaths of people with a learning disability and autistic people.

LeDeR reviews deaths to see where we can find areas of learning, opportunities to improve, and examples of excellent practice. This information is then used to improve services for people living with a learning disability and autistic people.


ELDP - Essex Learning Disability Partnership

The Essex Learning Disability Partnership (ELDP) is a partnership between Hertfordshire Partnership University NHS Foundation Trust (HPFT) and Essex Partnership University NHS Foundation Trust (EPUT). The partnership is responsible for all NHS learning disability community and inpatient services across Essex.

Our recent Podcast with Diane Henley highlighted the services of the Way In team who deals with the initial referrals to the service.

Essex Learning Disability Partnership Way In (referral service)

To refer in to the Essex Learning Disability Partnership service to access specialist health care support you can complete their online form. This can also be done by family, carers and practitioners.


Mid and West Essex Learning Disability Service

for information from the South Essex Learning Disability Service


STOMP - Stopping the over medication of people with a learning disability, autism or both

STOMP is a project in England to stop
the over use of psychotropic medicines.


NHS - Personal Health Budgets

A personal health budget is an amount of NHS money that is allocated to support your health and wellbeing needs. If you’re eligible for it, you (or someone who represents you), will work with your local NHS team to plan how you spend the money and get the care you need.



STOMP stands for Stopping The Over Medication of children and young people with learning disability, autism or both. It aims to stop the overuse of pychotropic medication for children and young people.

STAMP stands for Supporting Treatment and Appropriate Medication in Paediatrics.  This aims to make sure that children and families can access other treatment and support when children display behaviours that are challenging.


Constipation - advice for people with a learning disability

The NHS have produced a leaflet about Constipation. For people with a learning disability, constipation can cause complications if left untreated and can lead to death.

Community Dental Services

Community Dental Service

Dental services can be difficult for people with a learning disability or autistic people to access for many reasons. Although Reasonable Adjustments can be asked for, there are still sometimes a need for a specialist service. Below is information about Community Dental Services which are a CIC specialising in dentistry for people with additional needs.

NHS – Community Dental Services Essex

Offers high quality specialist NHS dental care and treatment for patients that are residents of Essex.

How it can help

Community Dental Services CIC can provide dental services for patients that meet the following criteria:

  • Special educational needs and disabilities (SEND)
  • Severe mental health needs
  • Complex social needs (including the homeless and drug/alcohol dependent)
  • Looked After Children who cannot receive ongoing care from general dental practice
  • Children requiring treatment who cannot be treated in general dental practice owing to behavioural difficulties and/or severe anxiety management
  • Adults with a treatment resistant dental phobia that has not been successfully treated

CIC also provide home visits (domiciliary care) for patients with long term and / or progressive medical conditions; mental illness or dementia, causing disorientation and confusion in unfamiliar environments.


General Dental Practitioners and Health and Social Care professionals can refer into the service. Self-referrals are also welcome for some services.

To see the full criteria for those who can access the service, please visit their or contact your nearest clinic.

How to access

Referrals are welcome from individuals, family, members, carers or health care professionals and once accepted into Community Dental Services, you will be added to the current waiting list. Patients needing urgent care will be given preference.

Buzzy UK

Buzzy®UK -for pain relief

Some families have told us about gadgets to help with pain relief, particularly for injections.

(PLEASE NOTE : Essex Carers Network do not recommend any organisation or device, but provide information for you to investigate. Other devices and organisations may be available)

Buzzy® has been used to block pain from over 31 million needle procedures. Just like cool running water soothes a burn, Buzzy uses a patented combination of cold and vibration to replace pain with temperature and movement.

Health - Hospitals

Health - Primary Care - GP Services

funding health

Health - Funding for people eligible for continuing health care

Health - Integrated Care Systems

Health - Annual Health Checks